PCD Research
About
Medical research charity, registered with the UK Charity’s Commission January 2022.
What is PCD
Inherited multi-system disorder that leads to repeated chest infections and worsening lung damage with time.
Need for PCD Research
Currently there are no treatments that have been shown to prevent or reduce permanent lung damage in PCD.
Why PCD Research
Only charity globally funding research towards a cure for PCD and calling for improved standards of care.
1 in 7,500
people have PCD
1 in 20
people are carriers for PCD
50+
genes cause PCD
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Challenges
01
Heterogenous
Over 50 genes cause PCD and this makes it harder to develop effective treatments.
02
Models of PCD
There is a global shortage of models of PCD. This makes research more difficult, especially when investigating if a treatment can get cilia moving.
03
Delivery
Getting any new therapy deep inside the lungs, past the mucous, to the correct cells, will be challenging.
04
Awareness
There is a lack of awareness about PCD. This impacts funding opportunities, and supports a false belief that PCD is mild. Children with PCD have worse lung function than those with cystic fibrosis.

Research we are funding
0
therapies that reduce or prevent permanent lung damage and decline
<£8
spent on respiratory research per person in the UK with chronic lung disease
£300k
raised by PCD Research since January 2022
Help give people with PCD a brighter future

Aims
Learn more about the vision and mission of PCD Research.

Meet the families
PCD is associated with a huge burden of treatment and disease. Hear people’s stories first hand.

Standard of Care
PCD Research is calling for an improved standard of care, and evidence based treatment for PCD.
Information for Researchers

PCD Research partnerships
Recent Events

Meet the trustees
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